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Sig Skeie
Member Since: 2/10/2011
  
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Sig Skeie   My Press Releases

You MUST NEVER GIVEUP

Published on 9/25/2018
For additional information  Click Here

Hi all you good people out there.

 

To put it honestly, the family has been a bit burned out. Zarah's mother has not been tempted to write, nor has she had the time or effort because things have been very exhausting with such a sick child who blows everyone for excess energy throughout the family.

 

 

 

For those of you that understand, or knows anything about the , can understand what theyr going true... if you dont know a clue about it.

Be happy your kids never got it. Or never will get it.

We added a little link all the way att bottom of this Artilce, so you can learn a little more about this illness too.

 

 

Allso I like to mention Zarah is member of the Aicardi Syndrome Foundation in USA.

They have a lot of knowleg about this really BAD ILLNESS.Just for info.

 

 

Now they are back in the blog community again, it's weird ... Several days without writing posts..Zarah's mom likes to write, but the way they have to do it on gets so strange. It gets so much trouble to write about, and much is about a system we are located in that does not work as it should.

 

 

She would probably never have started blogging if they do not need all the support it provides in this desperate situation. . Their only rescue has been to expose them completely to all of Norway through the media and now the whole world. Media has been their rescue so far. THEY LOVE MEDIA!

They had never come any way without being open and honest about this. You can not sit in silence if things do not work in this country, you must spread and ask for help.

YOU MUST NEVER GIVE UP!

Zarah Angelica continues to be unstable due to the disease, but now she has been so bad that it has been creepy.

She is so incredibly tired, unable to keep her head upright.

 

So here is some of what Zarahs mom has been telling about the situtation at the moment:

"Zarah`s mom said Now I've had infinite many hours in her chair, holding her to give her what she needs most-love and safety .

? But suddenly in the night we heard laughing and babbling in the baby call.

We all ran into her, Zaras` father Carl Fredrik filmed and we smiled in happiness WHAT a bunch of happy people we are when things go well I have to laugh.

Every little sign of change in her positive direction is so GREAT LOVE here in the house, one forgets everything else and happiness breaks in every cell in the body. It is incredible how much her form of day affects the atmosphere in this house.

 

One is basically locked 24/7 with her, but everything is so different when she's so weak. Then you will have extra peace in the house, and you wonder what the result will be. We check saturation, wonder if she needs oxygen or if she will manage to get through this time too...."

 

To read the rest of what Zarah's mom is writing about here, I like to invite you all Good people to click the link to our site, and find Update number 5 in there.

There you can read this full story, of what I started on here and much more about this little Princess and her family. Please Stop by, and welcome to share.

 

There Rest of this Story click the link above or you can click tight below here,

Pain relief treathment for Zarah & Family Life

To get a better understanding hopefully why we MUST do this. Why I must tell theyr story, and reason I want to do all this for this family...

This little Princess I want to stay ALIVE!

 

Click below or link at top, and read more about this history I started here...

Feel free to hook-up and follow the site you comes to, so you can get more info when there is some news about Zarahs healt, her daily life etc...

 

Thanks alot folks, lets show this Family that we Believe in the IBO SPIRIT - The Spirit of Share and Care!

 

Yours friendly, and hopefull,

 

Sigskeie

 

Just had to add this to it all, as WE all, and our friends Zarahs family got a Hugh Donation today. About 4000 NOK - Norwegian Kroner

Just click the link below to see how much that is in Dollars, Euros or what ever you need, click your flag, and the Norwegian Flag and you will see, or just use your fave valuta calculator:

currencie changer Valuta

 

 

What is Really this Acicardi Syndrom

 

I am allso the Abroad Fund Leader for the Non-Profit Organisation: 
Team Zarah Angelica Fund Rising. 
-TEAM ZARAH ANGELICA is a Legal Fundraiser Organisation
ORG. 921375409 - NORWAY
Member Note: To comment on this PR, simply click reply on the owners main post below.
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